As the Executive Director of Strategic Partnerships, Vanessa works with a variety of stakeholders to build collaborative relationships and innovative initiatives that meaningfully benefit the amyloidosis community. Vanessa brings over 15 years of experience centering cross-sector collaboration in pursuit of health and social equity to her position at ARC. She currently is an appointed member of the Patient-Centered Outcomes Research Institute (PCORI) Advisory Panel on Rare Diseases and prior to joining ARC was the inaugural Director of Research at the National Organization for Rare Disorders (NORD).

Venezuelan Opposition Leader María Corina Machado to Receive Concordia’s 2026 Leadership Award for Public Sector
The Concordia Leadership Council is proud to announce María Corina Machado, leader of Venezuela’s democracy movement, as the third and final recipient of the 2026 Concordia Leadership Award, recognized for

