As the Executive Director of Strategic Partnerships, Vanessa works with a variety of stakeholders to build collaborative relationships and innovative initiatives that meaningfully benefit the amyloidosis community. Vanessa brings over 15 years of experience centering cross-sector collaboration in pursuit of health and social equity to her position at ARC. She currently is an appointed member of the Patient-Centered Outcomes Research Institute (PCORI) Advisory Panel on Rare Diseases and prior to joining ARC was the inaugural Director of Research at the National Organization for Rare Disorders (NORD).
Concordia Horizon Summit: United States Report Now Live
The 2026 Concordia Horizon Summit: United States brought together leaders from business, government, and civil society in Dallas-Fort Worth to examine the forces reshaping the global economy and the opportunities emerging from a
