As the Executive Director of Strategic Partnerships, Vanessa works with a variety of stakeholders to build collaborative relationships and innovative initiatives that meaningfully benefit the amyloidosis community. Vanessa brings over 15 years of experience centering cross-sector collaboration in pursuit of health and social equity to her position at ARC. She currently is an appointed member of the Patient-Centered Outcomes Research Institute (PCORI) Advisory Panel on Rare Diseases and prior to joining ARC was the inaugural Director of Research at the National Organization for Rare Disorders (NORD).
Concordia Announces the Inaugural Washington, D.C. Forum
On September 16, 2026, leaders from government, business, civil society, and academia will convene for the inaugural Concordia Washington, D.C. Forum, a new gathering built to explore the geopolitical, economic, and strategic developments shaping
