As the Executive Director of Strategic Partnerships, Vanessa works with a variety of stakeholders to build collaborative relationships and innovative initiatives that meaningfully benefit the amyloidosis community. Vanessa brings over 15 years of experience centering cross-sector collaboration in pursuit of health and social equity to her position at ARC. She currently is an appointed member of the Patient-Centered Outcomes Research Institute (PCORI) Advisory Panel on Rare Diseases and prior to joining ARC was the inaugural Director of Research at the National Organization for Rare Disorders (NORD).

American Academy President Laurie Patton to Receive Concordia’s 2026 Leadership Award for Civil Society
The Concordia Leadership Council is proud to announce Dr. Laurie L. Patton, President of the American Academy of Arts & Sciences, as the second of three recipients of the 2026

